Tag: ALS

Gilman School Hosts GForce Lacrosse Clinic for 1st – 8th Graders – Don’t Miss It!

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Sunday March 5 from 1 – 4pm

Your child can get a tune up for the spring season at a fundraiser for Graham Harden, a college lacrosse teammate of Gilman Coach Brooks Matthews and Calvert Hall Coach Bryan Kelly, who has been diagnosed with ALS.

GForce Lacrosse Clinic for 1st – 8th Graders at Gilman School – Register Now!

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Sunday March 5 from 1 – 4pm

Your child can get a tune up for the spring season at a fundraiser for Graham Harden, a college lacrosse teammate of Gilman Coach Brooks Matthews and Calvert Hall Coach Bryan Kelly, who has been diagnosed with ALS.

GForce Lacrosse Clinic for 1st-8th Graders at Gilman School

0

Sunday March 5 from 1 – 4pm

Your child can get a tune up for the spring season at a fundraiser for Graham Harden, a college lacrosse teammate of Gilman Coach Brooks Matthews and Calvert Hall Coach Bryan Kelly, who has been diagnosed with ALS.

Ice Bucket Challenge Led to ALS Breakthrough at Hopkins

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ice bucket challenge

Remember those heady days back in the summer of 2014 when everyone was dumping buckets of ice water over their heads to support ALS research? The Ice Bucket Challenge was taken up by everyone from ex-presidents to football stars; the ALS Association received an additional $100 million in donations thanks to the challenge. But the challenge also faced critics, who argued that the viral movement was more about, well, virality than actually making any substantial change. Those critics may be feeling a little silly now that a Johns Hopkins team says that those donations were crucial to helping them make a breakthrough in understanding the terminal disease.

Hopkins ALS Research Center Benefits from Ice Bucket Challenge

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Johns Hopkins ALS researchers take the ice bucket challenge
Johns Hopkins ALS researchers take the ice bucket challenge

The ice bucket challenge has turned into a fundraiser’s dream. Everyone from George W. Bush to the Baltimore Ravens has dumped a bucket of ice water over their heads to raise awareness for amyotrophic lateral sclerosis (ALS). And while some were initially skeptical that the stunt would actually translate into increased donations, the viral power of the ice bucket challenge seems to be working–as of today, the national ALS association has received $53.3 million in donations, way more than the $2.2 million in garnered last year.

But the national ALS group isn’t the only one benefitting from ALS’s moment in the spotlight–the Robert Packard Center for ALS Research at Johns Hopkins has also seen its August donations go up 800 percent (!!) compared to last year.

The Southern Gentleman: Some Memories of A Friend

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Dudley Clendenen
Dudley Clendinen’s author photo from his book, A Place Called Canterbury

Last night was the opening of the new show at the American Visionary Art Museum, in which my friend from Woodstock, Steve Heller, has five pieces. I was extra excited about this because I introduced Steve to Rebecca Hoffberger, the director of the Visionary, whom I met at a dinner at Dudley Clendinen’s house five years ago.

Dudley! The thought of him gave me such a pang. One of the hard parts of losing someone is the way things just keep happening that you so wish the person could know about. At the time of Dudley’s death in May 2012, his niece Lucy Alibar had just released her movie, “Beasts of the Southern Wild,” which ended up with four Oscar nominations. I could only hope they get Entertainment Weekly in heaven.

I pulled out a copy of Dudley’s book, A Place Called Canterbury, to show Steve and his wife Martha. Canterbury is the Tampa retirement home where Dudley’s mother spent the last part of her life. Dudley clocked 400 days and nights there with her, documenting how the first generation of super-old people was dealing with life in their 90s and beyond. His author photo is nothing but hot: classic features, tanned skin, a shock of gorgeous white hair, rock-star sunglasses.

He died without ever getting very old at all.

I met Dudley in 2008, about twenty-five years after he changed his whole life by quitting drinking, coming out, and leaving his wife all at once. I instantly loved him; he had a deep, luscious Southern accent, a courtly manner, and a wicked sense of humor.  His apartment was like an outpost of the Visionary, the walls covered ceiling to floor with paintings, some by his partner, Josh Batten. You could generally find Dudley in the kitchen, scrambling eggs for a lunch party or baking cheese grits and a pork loin for dinner.

A Destination Wedding in Baltimore Like You’ve Never Seen

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OhioGayWeddingALSx400

 

In their 20 years together, Cincinnati couple Jim Obergefell and John Arthur had always resisted the urge to leave their home state (where same-sex marriage is banned by constitutional amendment) to get hitched in one of the growing number of states that would recognize their union. For as long as the Defense of Marriage Act was the law of the land, their marriage would have second-class status. So when the U.S. Supreme Court struck down Section 3 of DOMA in June, the two began to hatch a wedding plan, one made all the more urgent — and all the more complicated — by Arthur’s recent diagnosis of amyotrophic lateral sclerosis, a degenerative neurological disease.

Loyola Grad Runs the NYC Marathon Anyway

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Dessi ran his marathon in honor of his father, who has ALS.

In the aftermath of Superstorm Sandy, Mayor Bloomberg cancelled the New York City Marathon — but that didn’t stop Chris Dessi. After spending months training for the race he intended to dedicate to his father, Dessi decided that he didn’t need road closures or supporters on the sidelines handing him gross energy gels to run 26.2 miles. He just needed his father there, cheering him on.

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